Sunday, January 20, 2013

The charitable union launches the rare disease to succour the plan Succour the over one hundredth disease in the first batch

The charitable union launches the rare disease to succour the plan Succour the over one hundredth disease in the first batch
Cable of July 29 of www.chinanews.com Beijing (reporter Zeng LiMing) From today, China Mainland nearly hundred dagger-axe thank a disease patient in BJ Children's Hospital, six hospitals such as Peking Union Medical College Hospital, Shanghai Xinhua hospital, subsidiary children's hospital of medical university of Zhejiang accept checking free and drug therapy, become the intersection of China Charity Federation and rare succour first beneficiary that plan.
Dagger-axe thank disease because of lack, carry on normal lipoprotein circulate the intersection of supersession and the intersection of glucose and the intersection of brain and the intersection of glucoside and lipoprotein enzyme function need and the histoorgan caused is damaged in the body, it is rare and ill more common heredity, the patients of about 5,000 are receiving treatment in the whole world at present.That president hold here rare disease, Fan Baojun of China Charity Federation, succour planning to reveal at the unveiling ceremony, this meeting U.S.A. has been strong in Zambia Company and sign to present the medicine project agreement charitably, cooperates in implementing China's rare disease patient and succouring the plan.According to knowing, before this, U.S.A. is strong in Zambia Company through the foundation of health in the world, has already thanked a disease patient for offering the therapeutic medicine for ten years free for more than 130 serious diseases dagger-axe of China, the patient's therapeutic effect is obvious, most patients have already resumed normal life, study and worked.Fan Baojun claim in order to donate the intersection of treatment and medicine through thank the intersection of disease and patient for dagger-axe, rare disease that draw the attention of society to rare disease patient's colony succour plan, will implement in six large hospitals of Beijing of China, Shanghai, Hangzhou and Guangzhou, propagating the rare disease society at the same time popularizes with knowledge, raise the rare disease relief fund, promote the rare disease to succour the research in policy, in order to help China's rare disease patient to receive long-term medical science to succour.
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