Our country was born a disabled baby nbsp 1,200,000 inborn defects every year every 30 seconds
Grow a healthy baby, to youth of reproduction age, the expectation that more normal, however, to quite a few of people, this kind of expectation, has become extravagant hope - -There are data that indicate, about 1,200,000 neonates have inborn defects, congenital deformity every year in our country. 1,200,000, that is to say, every 30 seconds, our country increases a disabled baby newly, mean having a family to endure the agony to the fullest extent. The figure is heavy, but agony and injury that the inborn defect brings to family and the society, how heavy is it on earth? What kind of precautionary measures should take? CCTV " Weekly Quality Report " surveys this.
First, torment the person " The nerve is in charge of the deformity " Very outstanding in the northern province
Some healthcare hospitals for women children of Shanxi, often some children are perplexed by enuresis, some young men are tormented in severe pain by a kind of strange pain in the back, even hit " Close " Come to ease pain. This day morning, doctors are found after checking by student and the youth of a piece of pain in the back of a piece of enuresis, two people's backbone both have a small crack.
The doctor introduces, such small obscure crack lets the recessive backbone split on the backbone. Children's enuresis, at least more than ten percent of the influence split by recessive backbone; And adult have whom recessive backbone split quite a few, probably accounts for 3%.
Unfortunately, split after having the recessive backbone, enuresis, knew pain in the back after growing to manhood even if not as a child, and aggravate gradually, all one's life of agony.
The expert introduces, it is that the nerve is in charge of the odd-shaped inborn defect that such recessive backbone splits, lightest one of symptom.
Inborn defect: The existing body structure or function was unusual to refer to foetuses before being born in, this kind unusually appears to have early late. It is in foetus' development that the nerve is in charge of the deformity, because the nerve which is responsible for development of central nervous system is in charge of not closing completely, a kind of inborn defect caused, it is one of the most serious inborn defects in the world too.
The expert introduces, it is apt to cause foetus death that the nerve is in charge of the deformity, even if the foetus survives, also unavoidable life agony.
The reporter finds in investigations such as Shanxi, Shaanxi and other places, the nerve is in charge of the odd-shaped defect and born, often abandoned. After even if the nerve is in charge of the odd-shaped defect to grow up, destiny is still bumpy.
Little 13 -year-old Yan's miaow, because the nerve is in charge of the deformity, the sacral bone vertebra seat is longer than a very large neural cyst, her lower extremities are nearly paralysed. The doctor says, cyst will also grow up with little Yan's miaow together, once the damage threatens the life.
The reporter notices, some severe nerve is in charge of the odd-shaped defect, regardless of whether or not perform the operation, it is very easy because the nerve is damaged and disabled. What this individual established helps it just in the centre, because the child that the nerve is in charge of causing disability in deformity has taken nearly half. The operation wound of these children has been good for a long time, but it may be a dream to walk forever.
Reporter: Then you have any idea, grow up afterwards?
The nerve is in charge of the odd-shaped patient: "Want to go. "
31 provinces, obstetrical department of more than 460 hospitals of 132 cities and counties to the whole country throughout the year of monitoring center of inborn defect of our country, monitor the inborn defect. Found finally, the nerve of our country was in charge of the deformity and take place whole high, the incidence was about 10/10000 on average, in the high position in the world.
Deputy Director of monitoring center of China's inborn defect Zhu Jun:
"Especially our Shanxi, Shaanxi, Gansu, Inner Mongol, the province of the North, its nerve is in charge of the incidence of the defect, is well-above the average level of the whole country. Even arrange in the whole world in forefront. "
The nerve is in charge of the odd-shaped inborn defect to bring heavy spirit and financial burden to family and the society. The annual our country is in charge of up to 200 million yuan of direct economic losses of deformity because of the nerve.
Second, every year and 7 billion ones that lose " Tang's' syndrome "
Reporter's investigation finds, our country's neonatal life and healthy while in charge of the deformity the nerve and encroach on seriously, still face the serious threat of another kind of inborn defect, the chromosome that namely the foetus bore the weight of the genetic code on one's body morphs, lead to the fact the unusual defect of the function such as Tang's' syndrome, the mongolism, it is one of them.
There are more than 400 chromosome disease, syndrome that the mankind has already find been, the face is dull-witted, intelligence obstacle and development are slow it is nearly common characteristic, and Tang's' syndrome defect intelligence is especially low.
According to expert, at present, high of our country the intersection of Tang's and the intersection of syndrome and incidence in charge of the deformity like nerve, about 10/10000, but direct economic losses that lead to the fact far exceed the nerve to manage the deformity every year, reach 7 billion yuan.
Third, every year and 13 billion ones that lose " Congenital heart disease "
Though the nerve in charge of deformity, Tang's' syndrome to make people difficult to bear soes, however, reporter's investigation finds, and the incidence is higher, endanger more serious inborn defect, the ones that become and wreck the life are stupid and fierce.
This baby lying in rescuing the room, only born in an hour, the skin was livid purple, the life hangs a gleam of.
Shanxi pot imprisons the pediatrics attending physician of healthcare hospital for women children in the county Zhao celebrates:
" the normal sound is on the left side (thorax) Most strong, he to find most strong in right side, through odd hours such as oxygen intake after we give he, he does not improve all the time, considers he has serious congenital heart disease. "
5 hours later, this flower of neonate's tender life withered, the devil is congenital heart disease - -The bad inborn defect that causes of a kind of foetus' heart development, it is primary cause of disease of neonatal natural death of our country too. The relevant monitoring data of Ministry of Public Health showed, from 2005 to 2007, the incidence of congenital heart disease of our country had already exceeded 24/10000 for three years in succession, rank the first in all inborn defects, send at most in the whole country. Every year bring the enormous agony to numerous families of our country, in addition, cause the direct economic losses to be up to 13 billion yuan, it is more than 60 times that the nerve is odd-shaped.
Fourth, inborn defect remain high Deformity of the foetuses of 5%
Reporter investigation find pregnant woman enclose check, produce proportion of inborn defect, far go beyond imagining childbirth period.
The healthcare hospital for women children of Beijing Haidian sifts and checks to the centre director before production Hertz flies:
"Ones that found abnormality among the pregnant woman checking are very many too. Now, sift finding foetus' odd-shaped proportion is 5%, have an unusual one, 100 have 5 and have abnormal conditions, such a big proportion, now, the ones that isn't it that people imagined do not have great thing while being pregnant to say, it is not such. "
Compared with some American-European countries, our country's present inborn defect incidence takes a lot higher.
Scientific group's Vice Chairman of moment of Chinese medical science Second director in the west of China of Sichuan Wang Meng:
"On later stage of the eighties of last century, the inborn defect of developed country, the incidence had already dropped to about 3%, and the inborn defect at present of our country rate is still up to about 5%. This disparity is bigger, we can't avoid the question, because the incidence is high, also prove what we can prevent is enormous potential. "
Expert reveal since monitoring the inborn defect in 1986, of our country neonatal inborn defect in high to take place the state nearly all, 2 years ago, nearly 30 million families bore the defect, accounted for 1/ 10 of national family's total number, that is to say, there are about ten percent of the families early in the whole country, are bearing or still bearing the agony that the inborn defect is bringing. Moreover, this kind of misfortune is also expanding now. Our country was born in 20 million neonates every year, calculated according to 5% inborn defect rate, mean every 30 seconds, our country increases a defect, increase about 1,200,000 people of inborn defect newly every year, have all caused heavy mental burden and economic losses to patient and family.
Deputy Director of monitoring center of China's inborn defect Zhu Jun:
"It is 3 main deformity these that reach, spend direct the intersection of economic losses and 200 more than more than pieces of country every year, then, more, if as many as ten thousand kinds of deformity added up, then this economic losses are very heavy. "
Reporter investigation find neonatal inborn defect sweep across our country, even whole world already put its tight encirclement into. At present, the neonate with serious defect accounts for the world and was born in the total population about 6%, will increase no less than 7,900,000 people every year, among them nearly half would die 5 years old ago, 3,200,000 defects will be turned into lifetime deformity.
Look for the pathogenic factor of the inborn defect in time and prevent and cure actively, it is a difficult problem that countries all over the world face.
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